5 Reasons Why Your Support Matters

1. Amplifying Patient Voices

With a broad and diverse network of patients and caregivers who are engaged in discussions and willing to share their stories, All Things PG has the power to play a crucial role in advocacy by ensuring that the voices of those affected by PG are heard by researchers, healthcare providers, and policymakers. All Things PG supports these efforts by hosting events and creating tools that empower patients and caregivers to engage in research and public policy, providing perspective and insight into the research and development process for new treatments. By facilitating relationships between patients and researchers, we ensure that PG patients’ opinions and ideas are heard.

2. Driving Research and Innovation

All Things PG contributes to research by collecting patient experience data, supporting publications, and creating a “research ready” community for upcoming clinical trials. Patient and family member/caregiver insights can guide the development of therapies tailored to rare disease communities, which might otherwise be overlooked.

3. Fostering Community and Support

A key part of All Things PG is to connect patients with support groups and resources to address the practical needs and emotional well-being of patients and caregivers. This is especially vital for PG as a rare disease where isolation, lack of information, delays in treatment, and the cost of medical care can lead to despair.

4. Enhancing Collaboration and Advocacy

Grants and sponsorships enable virtual and in-person meetups and workshops that strengthen our PG advocacy network and foster collaboration among patients, caregivers, and healthcare professionals. These gatherings are essential for sharing knowledge, building community, and advancing collective goals.

5. Creating Long-Term Impact

By investing in our patient organization, All Things PG, sponsors contribute to sustainable change in healthcare systems, policy, and research. All Things PG serves as a catalyst for systemic improvements that benefit not only rare disease patients but the broader medical community.

 

For information please contact stoos@allthingspg.org