What Is This Survey About?
This survey is for people who have a rare skin condition called Pyoderma Gangrenosum (PG) or for those who take care of someone who has it.
Take the survey here or read more about it below.
Who Can Take the Survey?
- People who have PG.
- Family members or caregivers who help someone with PG.
What Does the Survey Ask?
- How PG Started - Questions about how the skin problem began—like if it started with a bump, pain, or sore.
- Getting Diagnosed - How long it took to find out it was PG, and if doctors thought it was something else at first.
- Other Health Issues - If the person has other health problems besides PG.
- Treatments - What kinds of medicine or care they’ve tried.
- Daily Life - How PG affects things like going to school, work, etc.
- Feelings and Support - How PG makes them feel and if they get help from doctors, friends, or family.
- Helping with Research - If they would be okay joining a study to help scientists learn more about PG.
For Caregivers
- How they help the person with PG.
- What they’ve learned and how they feel.
- What kind of help they need.
Why It Matters
The answers help doctors and researchers understand PG better so they can find better treatments and support for people who have it.